Who are we?

About Us

We are comprised of a variety of different individuals who have been touched in some way by fibular hemimelia. Some of us are parents, other family members or friends of someone with FH. Some of us are individuals who were born with FH and want to share our personal experiences with others. We welcome you to join us in our forums to talk with families from all over the world.

History

This support group is owned an operated by Angie Wiedner, RN,BSN. Angie has a son that was born with fibular hemimelia. After years of wanting to talk with other parents about their experiences she created the first online support group dedicated to dealing with FH in 2005 at Yahoo! Groups. By 2008 the group had grown to over 150 members and was continuing to grow rapidly. There was a need for an easier and improved way to access information, especially for new members. So with the encouragement of another mom in the group, Kathryn, the vision for this site was sparked.

 

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